Caregiving in America

Lance A. Slatton

"The Senior Care Influencer" & Host of All Home Care Matters

Caregiving in American book cover

A Comprehensive Guide for America’s Family Caregivers

Caregiving in America

Caregiving can begin with a phone call, a diagnosis, a fall, a hospital discharge, or the gradual realization that someone you love can no longer manage alone. Suddenly, families are expected to make decisions about health care, home care, dementia, finances, legal planning, long-term care, safety, grief, and quality of life — often without a roadmap.

In Caregiving in America, Lance A. Slatton brings together practical guidance, real-world caregiving experience, trusted resources, checklists, worksheets, and perspective designed to help families understand what comes next, ask better questions, find support, and make more informed decisions throughout the caregiving journey.

63 Million

Nearly 1 in 4 adults are family caregivers right now.

Source: ARP & National Alliance for Caregiving, Caregiving in the U.S. 2025

$7,242

The average family caregivers pay out of pocket yearly.

Source: AARP, Caregiving Out-of-Pocket Costs Study

$1.01 Trillion

The annual economic value of family caregiving in America.

Source: AARP, Valuing the Invaluable 2026

1 in 3

Caregivers have children while caring for an adult loved one.

Source: ARP & National Alliance for Caregiving, Caregiving in the U.S. 2025

A Caregiving Guide Built for the Questions Families Actually Face

Family caregiving is rarely one decision. It is a series of decisions that can change from week to week — and sometimes from hour to hour. Families may need to understand a new diagnosis, coordinate medical appointments, evaluate home care, prepare a safer living environment, manage medications, navigate Medicare or Medicaid, explore veterans’ benefits, talk with siblings, plan for future care, respond to a crisis, or simply figure out how to get through the next day.

Caregiving in America was created to help bring those moving pieces together. Rather than treating caregiving as a single issue, the book looks at the larger journey: the emotional realities, the practical responsibilities, the systems families encounter, the choices they may need to make, and the resources that can help them move forward with greater confidence.

The result is a wide-ranging caregiving resource for people who are already providing care, preparing for what may be ahead, or trying to support someone they love without knowing where to begin.

Because Caregivers Should Not Have to Learn Everything the Hard Way

Caregivers are often handed enormous responsibility with little preparation. They may be expected to understand medical terminology, insurance rules, discharge instructions, legal documents, care settings, safety concerns, family dynamics, and financial consequences while also coping with fear, exhaustion, uncertainty, and grief.

Caregiving in America is designed to reduce that feeling of being dropped into an unfamiliar world. It helps readers identify the questions they may not yet know to ask, understand the different types of support that may be available, and think through decisions before a crisis forces those decisions to be made for them.

The book also recognizes something families often forget: caregiving is personal. No two families, diagnoses, financial situations, relationships, or care journeys are identical. The goal is not to prescribe one “right” way to care. The goal is to help families become better informed, better prepared, and better supported.

One Resource. The Full Caregiving Journey.

Getting started as a family caregiver

What to do when caregiving begins unexpectedly and how to organize the first critical decisions.

Understanding aging, illness, and changing care needs

Recognizing when additional help may be needed and how needs can evolve over time.

Alzheimer’s disease, dementia, and cognitive change

Practical education for families navigating memory loss, behavior changes, safety, communication, and care planning.

Home care and caregiving at home

Understanding the role of non-medical home care, home health care, private caregivers, and the questions families should ask providers.

Long-distance caregiving

Coordinating care, communication, safety, and decision-making when the caregiver does not live nearby.

Hospitals, rehabilitation, and care transitions

Preparing for discharge, avoiding gaps in care, and understanding what families may need once a loved one returns home.

Assisted living, memory care, nursing homes, and other care settings

Understanding the differences and evaluating options based on individual needs.

Medicare, Medicaid, long-term care insurance, paying for care

Helping families understand common financing pathways and where to seek qualified guidance.

Veterans’ programs and benefits

Including information that can help eligible veterans and surviving spouses explore support such as Aid and Attendance.

Legal and advance-care planning

Powers of attorney, guardianship considerations, advance directives, Five Wishes, and other planning conversations.

Family conflict and difficult conversations

Navigating siblings, changing roles, decision-making disagreements, boundaries, and the emotional strain caregiving can cause.

Work and caregiving

Balancing employment with care responsibilities and understanding resources such as the Family and Medical Leave Act where applicable.

Grief, anticipatory grief, and the end of caregiving

Balancing employment with care responsibilities and understanding resources such as the Family and Medical Leave Act where applicable.

Caregiver stress, burnout, guilt, and self-assessment

Understanding loss before and after a loved one dies and preparing for the transition that follows.

Checklists, worksheets, questions, resource guidance

Practical tools readers can return to as circumstances change.

For Anyone Who Loves Someone Who May Need Care

Caregiving in America is written for more than the person who already identifies as a “caregiver.” It is for the daughter noticing that her mother is forgetting appointments. The husband learning how to support a spouse after a diagnosis. The adult son trying to coordinate care from another state. The family debating whether home is still safe. The working caregiver stretched between a job, children, and aging parents. The friend, neighbor, advocate, or professional trying to help a family understand its options.

It is also for families who want to prepare before a crisis. Planning early can create more choices, reduce pressure, and make difficult conversations easier to have while the person receiving care can still participate in them.

Family Caregivers Adult Children Spouses & Partners Long-Distance Caregivers Families Facing Dementia Care Professionals

Practical Tools Readers Can Use, Revisit, and Share

Caregiving decisions are easier when important information is organized. Throughout Caregiving in America, readers will find practical tools intended to turn information into action — including checklists, self-assessments, worksheets, questions to ask, planning prompts, and resources that can be revisited as care needs change.

These tools are designed to help caregivers prepare for conversations with physicians, hospitals, home care agencies, senior living communities, attorneys, financial professionals, insurers, family members, and other people who may become part of the care team.

Written by Someone Who Has Lived the Caregiving Journey

Lance A. Slatton’s work in caregiving did not begin as a media project or a professional title. It became personal when a serious medical crisis involving his father turned what was expected to be a short period of help into nearly three years of intensive family caregiving.

That experience changed the direction of his life and shaped the questions at the center of this book: Why do so many families enter caregiving without knowing what resources exist? Why are caregivers expected to navigate complex systems while under enormous emotional pressure? And how can families be better prepared before they reach a breaking point?

Caregiving in America combines that lived experience with more than two decades in health care, senior care, home care, caregiving education, advocacy, and conversations with caregivers, clinicians, researchers, authors, innovators, policymakers, and leaders across the aging and long-term care landscape.

“Caregiving changes families long before most families ever think to call themselves caregivers. The more we can help people understand what may be ahead, the better chance they have to make decisions from a place of preparation instead of crisis.”

About Lance A. Slatton

Lance A. Slatton is a nationally recognized voice in caregiving and senior care, known as “The Senior Care Influencer.” He is the founder and host of All Home Care Matters, an award-winning platform focused on caregiving, aging, dementia, home care, and long-term care education, and he serves as President of AlzAuthors, a global community and resource dedicated to books and education about Alzheimer’s disease and dementia.

With more than 20 years of experience in health care and senior care, Lance is also a co-founder and Senior Case Manager of Enriched Life Home Care Services, where he has worked directly with older adults, individuals living with chronic conditions, and families navigating care at home.

His work has been shaped by both professional experience and his own family caregiving journey. Through his books, interviews, advocacy, speaking, and media work, Lance focuses on helping caregivers find trustworthy information, understand their options, and feel better equipped to navigate the realities of caregiving.
He is also the author of The All Home Care Matters Official Family Caregiver’s Guide, an award-winning resource for family caregivers.

Get Your Copy of Caregiving in America

Caregiving in America is available in print and digital formats through major booksellers. Choose the format and retailer that works best for you.
Title
Caregiving in America
Full subtitle
Understanding, Navigating, and Transforming the Most Important Responsibility Millions of Families Never Expected
Author
Lance A. Slatton
Paperback
766 pages • ISBN 978-1-4566-8420-4
Hardcover
ISBN 978-1-4566-8421-1
Publisher
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Formats
Paperback • Hardcover • Ebook
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Frequently Asked Questions

What is Caregiving in America about?
Caregiving in America is a comprehensive guide to the practical, emotional, financial, legal, and care-related decisions families may face while supporting an aging, ill, disabled, or cognitively impaired loved one. It covers the caregiving journey from the earliest warning signs and first decisions through home care, dementia, care settings, paying for care, legal planning, family dynamics, caregiver burnout, grief, and the end of caregiving.

The book is written for family caregivers, adult children of aging parents, spouses and partners, long-distance caregivers, families navigating dementia or Alzheimer’s disease, and anyone who wants to prepare for future caregiving responsibilities. It can also be useful to care professionals who want a broad view of the questions and pressures families encounter.

Yes. Caregiving in America includes substantial guidance for families navigating memory loss, Alzheimer’s disease, dementia, cognitive change, communication challenges, safety concerns, care planning, and the evolving support needs that often accompany these conditions.
Yes. The book discusses common caregiving and long-term care financing topics, including Medicare, Medicaid, long-term care insurance, veterans’ benefits, private-pay care, and other financial considerations. Because eligibility rules and programs can change, readers should verify current requirements with the appropriate agency or qualified professional.
Yes. The book includes checklists, planning prompts, self-assessments, questions to ask, and other practical tools designed to help caregivers organize information, prepare for conversations, and revisit important decisions as care needs change.
No. Caregiving in America is also intended for people who are beginning to notice changes in a loved one, coordinating care from a distance, helping another family member who is the primary caregiver, or trying to prepare before a crisis occurs.
Caregiving in America is available through major online booksellers in paperback, hardcover, and ebook formats. Use the purchase buttons on this page to choose your preferred retailer and format.
No. The book is an educational caregiving resource and is not a substitute for individualized medical, legal, financial, insurance, or other professional advice. Readers should consult qualified professionals for guidance specific to their circumstances.

You May Not Have Chosen Caregiving. You Can Choose to Be Better Prepared for It.

Whether caregiving has already become part of your life or you are trying to prepare for what may come next, Caregiving in America was created to help you understand the journey, organize the decisions ahead, and find the resources and support that can make the responsibility more manageable.

Start with the question in front of you today. Keep the book nearby for the questions that come tomorrow.